After almost 25 years, living with Multiple Sclerosis and still walking around. Unbelievable what MS has taught ME. ALSO, PLEASE NOTE ! SOME OF MY POSTINGS ARE GRAPHIC, TOO THE POINT, AND NOT "FEEL GOOD". I HAVE A WEAKNESS TO SAY WHAT I THINK. RATED: NFW, NOT FOR THE WIMPY Be sure and check out all the Pictures
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Monday, April 21, 2014
The Shingles Virus is NEEDED for MS patients and the results (CRAP)
Last week I went to my new Primary Care Provider (PAP) who is fantastic. He is not going to manage my MS but watch me and tell me if I need to go to a Neuro.
I brought up do I need a Shingles vaccination or not. He advised me that it was needed because my auto-immune system is in such bad shape. He told me Shingles could cause the MS to escalate and to get it done. Due to the fact that the vaccination goes out of date quickly, he does not do it.
I checked with my local pharmacy and they do the injections. I checked with Humana Gold Plus and they do pay for the injection but there is a $ 95.00 copay !
Here we go. I contacted the manufacturer, Merck, and they have a Patient Assistance Program for the vacc. They inj must be given at a Doctor's office and they advised me the closest was the Hamilton County Health Department, 60 miles away. What a Damn Joke.
I called Hamilton County and first, you have to be 59, I am 2 years too young. Then they were not aware of the Merck program, they do not accept the insurance and worse, the co-pay there is over $ 255.00. They advised me to go to my pharmacy, when I told them I could not afford $ 95, she said to save my money.
The reason because of my urgency is a dear friend just had a severe bought with Shingles and she is only 40, yes 40.
Well, I called Merck back and told them they need to remove these useless people from their list. I am not going to sound racist but here is what she implied at the Health Dept.. If I had no insurance and lived in the 4th street projects, living on food stamps and welfare, I could get it free, everyday.
I hope Many of my fellow MS'ers read this and pay attention. Get this vaccine, somehow. I am trying to figure out something, just don't know what. This is ridiculous. I pity folks that don't have computer connections and just listen to what these "Government Agencies" have to say.
I get the impression that we are simply left to our own devices. I even ask Merck to send it to me, If I can give myself a shot every other day, why can't I pop one more or go to the Drugstore with my own vial. Common sense should come in somewhere. More to come, when I cool off. I wrote this maybe too quick but, I am pissed....Mitch
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