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Sunday, January 18, 2015

I am coming back

I just decided to get with the program on my blog, so it's coming very shortly. I also read the comments, which for some stupid reason I never knew how to do, so, I will be answering every body and being responsible, you want answers and comments from me so they will be coming, MS has been pretty rough as of late put I am going to fight back, MORE TO COME, Mitch

Monday, April 21, 2014

The Shingles Virus is NEEDED for MS patients and the results (CRAP)

Last week I went to my new Primary Care Provider (PAP) who is fantastic. He is not going to manage my MS but watch me and tell me if I need to go to a Neuro. I brought up do I need a Shingles vaccination or not. He advised me that it was needed because my auto-immune system is in such bad shape. He told me Shingles could cause the MS to escalate and to get it done. Due to the fact that the vaccination goes out of date quickly, he does not do it. I checked with my local pharmacy and they do the injections. I checked with Humana Gold Plus and they do pay for the injection but there is a $ 95.00 copay ! Here we go. I contacted the manufacturer, Merck, and they have a Patient Assistance Program for the vacc. They inj must be given at a Doctor's office and they advised me the closest was the Hamilton County Health Department, 60 miles away. What a Damn Joke. I called Hamilton County and first, you have to be 59, I am 2 years too young. Then they were not aware of the Merck program, they do not accept the insurance and worse, the co-pay there is over $ 255.00. They advised me to go to my pharmacy, when I told them I could not afford $ 95, she said to save my money. The reason because of my urgency is a dear friend just had a severe bought with Shingles and she is only 40, yes 40. Well, I called Merck back and told them they need to remove these useless people from their list. I am not going to sound racist but here is what she implied at the Health Dept.. If I had no insurance and lived in the 4th street projects, living on food stamps and welfare, I could get it free, everyday. I hope Many of my fellow MS'ers read this and pay attention. Get this vaccine, somehow. I am trying to figure out something, just don't know what. This is ridiculous. I pity folks that don't have computer connections and just listen to what these "Government Agencies" have to say. I get the impression that we are simply left to our own devices. I even ask Merck to send it to me, If I can give myself a shot every other day, why can't I pop one more or go to the Drugstore with my own vial. Common sense should come in somewhere. More to come, when I cool off. I wrote this maybe too quick but, I am pissed....Mitch

Wednesday, March 12, 2014

My Sincere Apology

I have neglected writing for too long. It seems sometimes my mind is too pre-occupied with issues and the news. We have had medical problems, both Deanna and I. She is currently recouping from pneumonia. It came up unexpectedly, of course I guess all illness is not expected. Thank God, after a one day stay in the Hospital she is on the road to recovery. A very close friend of mine called yesterday and told me today he was undergoing Heart Bypass Surgery. He told me he was having 3 done. His wife called about 2 pm and he had SIX. He is expected to recover ok but it is going to be a long hard road. Now to stay on topic. The rolling disaster that Obamacare has occurred is spilling over into the SSDI/Medicare world. It appears that Medicare Advantage plans, like ours, may be in danger. When Obama first announced is intentions, he demonized Advantage plans and as we all know, when he targets something, IT is in danger. I have not been thru a Social Security Disability review in several years, and ,as it goes, it is something to fear and worry about. The climate in D.C. is such that that anyone on disability is an expense the govt would love to remove. $ 16,000 a year is breaking this govt, really. Kerry can go promise One Trillion in aid to any country that hates us, but, we are a drain, really ? The cost of living is killing us. Currently, our bills are paid, no groceries have been bought, and we have $ 100 to last 2 weeks. This is really great, huh ?. We are barely getting by. Car insurance, homeowners, both keep going up. Utility bills have been high, due to the global warning winter that has been one of the coldest in 100 years. Crap. The myth of global warning is being pushed by govt efforts to control us further. Remember, Anything the govt gives they can easily take away, without remorse. One of the steps that is on the track of the govt is to install a meter for the electricity in your home that they can control. If they determine that you have your thermostat too high or low, they will remotely change the setting. Isn't that freedom. Enough for now and more when I can have a minute, Mitch

Saturday, December 7, 2013

Time to complain about another frigging symptom

For the last month, I have a had s Neuropathic Pain (NP) issue in my left arm, at times almost to the point of tears. I have toyed with my Lyrica, increasing a dose here and there. The hydrocodone does not touch it. The first time it nailed me for 3 weeks, I tried to tell my Pain Management Dr. about it and they just kinds of glazed over it. like I was out of my head. I started back with PM for the purpose of paying for someone to work on my pain and dot screw with me. Well, I go again in about a week and maybe I look too good as usual, I guess I need to not take a bath, trim my beard, not comb my hair and wear a toboggan, crap. I don't want to look like a homeless person but maybe that is what they want, Any input ? More to come, when my arm and shoulder lets up, Mitch

Thursday, October 31, 2013

GRAND ANNOUNCEMENT, 1.5 % PAY INCREASE 2014 !!! Yahoo.

Yesterday, all the news including my source of a lot of info, Drudge, stated the government has calculated that the Cost Of Living Adjustment will be, ARE YOU READY ? ONE POINT FIVE PERCENT (1.5%) Whoopee Again, the government is screwing the Social Security recipients for extra funds for other things..( How about helping Obamacare, or how about the upcoming push for un-documented aliens) I am beside myself. I fear I have taken to the keyboard before taking the time to calm down, AGAIN ! What sane person, no matter their position in life, can believe that the Cost of Living in this Country has only increased by 1.5 %, Crap. For instance, Unleaded gas in this small town was $ 3.10 per gallon the evening that Congress got together and prevented the "Cliff" we were going over. Well guess what, the next morning Gas increased 12 CENTS per gallon ! No explanation and much to my dismay, the public is so de-sensitized by this trauma, they do not even notice, ! HELL ~ When our Commander in Chief was elected the FIRST TIME< Regular Unleaded was $ 1.89 Per Gallon ! WE have been over $ 3.00 for so long, the shock is worn off. I guess the under $ 2.00 Per Gallon Gas Prices will be the Good Old Days. If you walk with a rock in your shoe long enough, you will get used to it, that is where we are now. I have to take a walk and try to figure out what expenses I can cut now, simply, We are losing our Ass's Get a good grip, we are going down the pit, some one must speak up, Maybe You ?????????????????? Later., Mitch.

Tuesday, September 17, 2013

I have changed the Blog name again and this why..

Over the last few years, My Blogging attitude has evolved. First I was Mad, just plain Mad at the the Disease, The Government and all the endless red tape, the Doctors and their inept way of doing things, Nashville, for their Medication Enforcement whatever up my Butt and up my doctor's butt as well and I can go on and on. Well, Now it is simply going to be a commentary on survival. The citizens of this country on SSI or SSDI like Deanna and I or whatever alphabet soup agency "helps" us, are spiraling down into oblivion with the cost of living. I am going to expound more on this but I must get my thoughts together. More to come, Mitch